Professor Belinda Goodenough
Connection to the dementia community: Research and knowledge translation
Position/Job Title: AJDC Co-Editor; Executive Director Dementia Training Australia; Director, Centre for Health Research Illawarra Shoalhaven Population (CHRISP), Australian Health Services Research Institute (AHSRI)
Dementia Training Australia and Australian Health Services Research Institute, Faculty of Science, Medicine and Health, University of Wollongong, NSW, Australia.
Belinda is a behavioural scientist with over 25 years’ experience in health, and health services research. Belinda has a specific interest in knowledge translation and implementation science – how to put evidence into practice.
Much of her work at Dementia Training Australia involves developing and disseminating resources to help support the workforce to lead innovation and change. Her work at CHRISP facilitates health research capacity-building and the translation of research findings into policy and practice.
Aspect of AJDC I would like to see develop: More of the ‘big picture’ lens, to help practitioners and service managers understand the vision in national policy developments.
Associate Professor Lyn Phillipson
Connection to the dementia community: Researcher
Position/Job Title: AJDC Co-Editor; Principal Research Fellow, University of Wollongong
Organisation/Affiliation: School of Health and Society, Faculty of Arts, Social Sciences and Humanities, University of Wollongong, NSW, Australia.
Lyn is an award-winning public health academic who engages in research and action to promote aged and dementia-friendly communities. She has expertise in the development and use of inclusive and participatory methods to work with people with dementia and their care partners. Lyn also has extensive experience in the use of social marketing as an action framework to promote health in diverse areas including: dementia friendly communities, respite for carers of people with dementia; dementia risk reduction, and dementia help-seeking and service utilisation. In 2018, Lyn was appointed as an Age Friendly Mentor under the World Health Organisation and International Federation of Ageing’s Age-friendly Environments Mentorship Program (MENTOR-AFE), established to foster leadership development in people striving to make their communities more responsive to people of all ages.
Aspect of AJDC I would like to see develop: Increasing the focus on life and care for people with dementia in community settings.
Dr Louisa Smith
Connection to the dementia community: Researcher and advocate for people with dementia
Position/Job Title: AJDC Co-Editor; Senior Lecturer, Deakin University, Disability and Inclusion, Faculty of Health
Organisation/Affiliation: Disability and Inclusion, Faculty of Health, Deakin University
Louisa is an early-career researcher and Senior Lecturer (Disability and Inclusion) at Deakin University. Louisa’s research interests centre on the relationship between experiences of disability across the life course, complexity, social policy and social change. Louisa is particularly interested in supporting people with dementia to be engaged in research and co-design processes for connection. Louisa uses creative and arts-based methods to engage people with complex support needs, disabilities and dementia, and those who provide care.
Aspect of AJDC I would like to see develop: Supporting the inclusion of the voices of people with dementia and including these voices in debates about dementia care.
Ms Kerry Schelks
Connection to the dementia community: Writer and editor specialising in dementia care. Kerry’s father lived with dementia and she understands first-hand the importance of access to quality dementia care support, information and resources.
Position/Job Title: AJDC Managing Editor
Kerry is an experienced communications, media and publishing professional, specialising in the dementia, aged and health care sectors. She has worked as a journalist, production editor and writer for various Australian media organisations, as well as NSW Health and within the School of Science, Medicine and Health, University of Wollongong. Kerry has been Managing Editor of the AJDC since 2012, with responsibility for co-ordinating publication of the journal, edition planning and production.
Aspect of AJDC I would like to see develop: Increasing the range and depth of topics and opinions featured in the AJDC – making it even more relevant and useful to all those with an interest in dementia.
Ms Catherine Ross
Connection to the dementia community: Writer and editor specialising in dementia care
Position/Job Title: AJDC Contributing Editor
Australian Journal of Dementia Care and University of Wollongong.
Catherine has worked in the dementia care field for over 30 years. She began as an activities worker in an aged care facility then worked for many years as a social worker with people with dementia. For the past 15 years Catherine has worked as a writer and editor specialising in dementia care, with key roles including the Editor of the UK Journal of Dementia Care from 2012-2014, and editor of Social Care Institute for Excellence’s (SCIE) Dementia web resource (2009-2015). She has been a Contributing Editor for the Australian Journal of Dementia Care since 2018.
Aspect of AJDC I would like to see develop: Growing a sense of community among AJDC readership through greater online engagement.
Mr Andrew Chapman
Connection to the dementia community: Andrew has been a member of the AJDC team since its launch in 2012 and also worked as Production Editor with the UK Journal of Dementia Care for many years.
Position/Job Title: AJDC Production Editor
Organisation/Affiliation: Australian Journal of Dementia Care.
Andrew has been an editor and page layout expert for more than 20 years and is a Professional Member of the Chartered Institute of Editing and Proofreading.
Dr Marita Chisholm
Connection to the dementia community: Researcher and Registered Nurse. Marita’s father is living with dementia
As a Registered Nurse, Marita has worked in a variety of clinical settings. As an early-career researcher, she has over 10 years’ research experience across a range of projects at Monash University and La Trobe University, completing her PhD in 2016. She is an Honorary Research Fellow at the Australian Centre for Evidence Based Aged Care (ACEBAC), School of Nursing and Midwifery, College of Science, Health and Engineering, La Trobe University.
Previous roles have included Innovation and Projects Manager Older Persons Health at Rural Northwest Health, and a Fellow with the Capacity Building in Care Research (CBCR) program, Dementia Centre for Research Collaboration (DCRC).
Marita’s interests include person-centred care, personhood, and rural and regional communities.
Aspect of AJDC I would like to see develop: Dementia care in rural and regional Australia across a range of care settings (with an interest in the Aged Care Quality Standards).
Mr Dennis Frost
Position/Job Title: Chair of the Southern Dementia Advisory Group, Kiama, NSW, Australia; Dementia Australia’s Dementia Advisory Committee member
Southern Dementia Advisory Group, NSW, Australia; Dementia Australia Dementia Advisory Committee.
Twelve years ago, Dennis’ mother was diagnosed with dementia shortly after her 90th birthday and her family were advised that she should go into care. This was arranged and after a few weeks she had a fall and broke her hip. She died a short time later as a result of the complications.
Then, in 2013, a couple of days after his 59th birthday, Dennis was diagnosed with frontotemporal dementia. After a year or so of increasing social isolation he became involved in the
In 2016, Dennis was invited to speak at the Alzheimer’s Disease International (ADI) conference in Budapest about his experiences. In 2017 he was invited to present about the Kiama project at the Dementia Friendly Communities workshop event at the 2017 ADI conference in Kyoto, Japan. He was also invited to Singapore to advise on and discuss Dementia Friendly Communities with Singapore’s Alzheimer’s Association.
Dennis has been a member of Dementia Australia’s Dementia Advisory Committee since late 2017.
Since his initial involvement with the Dementia Friendly Kiama project he has been involved in numerous research projects and has taken on a research advisory role with the University of Wollongong’s Connections for Life with Dementia
projects. More recently, he has also taken on advisory roles with the Sydney Dementia Network and University of Queensland, as well as continuing his role as Chair of the Southern Dementia Advisory Group. He is also a member of the StepUp for Dementia Research public involvement panel.
Dennis has a Bachelor of Science (Hons), Diploma of Education, Associate Diploma of Computer Applications and is a Certified Netware Engineer (CNE).
Aspect of AJDC I would like to see develop: I am interested in research news, with the experience of the project participant, and promoting the active involvement of people living with dementia in all aspects of research, from concept to implementation, including the co-design and development of assistive technologies.
Dr Claire O’Connor
Connection to the dementia community: Researcher
Position/Job Title: Research Fellow, HammondCare; Conjoint Lecturer, School of Population Health, UNSW
Organisation/Affiliation: HammondCare; School of Population Health, UNSW.
Claire is an early-career researcher and Research Fellow at the Centre for Positive Ageing, HammondCare, a Conjoint Lecturer in the School of Population Health, UNSW, and is a registered occupational therapist (AHPRA). Her research focuses on people living with dementia, their families and supporters, with particular interest in non-pharmacological intervention to maximise engagement, functioning, independence, and to support behaviour management. Combining her clinical training in occupational therapy and research skills, Claire is passionate about contributing to research that is meaningful to people impacted by dementia and is particularly interested in the translation and implementation of research to generate positive change.
Aspect of AJDC I would like to see develop: Translating research and evidence-based developments in dementia practice for people with lived experience of dementia.
Associate Professor Lezanne Ooi
Connection to the dementia community: Lezanne’s Gran had dementia; they were very close when she was young. Lezanne was already studying neuroscience when her Gran received her diagnosis, so she decided to research Alzheimer’s disease and other dementias.
Position/Job Title: Principal Research Fellow
University of Wollongong and the Illawarra Health and Medical Research Institute.
Lezanne is an NHMRC Boosting Dementia Research Leadership Fellow and Group Leader of the Neurodevelopment and Neurodegeneration Lab. She established her lab at the University of Wollongong in 2012.. She uses cells from patients to try to understand the changes that occur in diseases like Alzheimer’s disease and to test potential drugs.
Aspect of AJDC I would like to see develop: Involving people living with dementia, carers and consumers in research design and research finding discussions.
Dr Chris While
Connection to the dementia community: Educator and researcher
Position/Job Title: Training Consultant at Dementia Training Australia; Research Fellow, La Trobe University and the Australian Centre for Evidence Based Aged Care
La Trobe University.
Chris is an early-career researcher and registered psychiatric nurse, with extensive experience in the care of people living with dementia and older adults with mental illness. Her interest is in applied implementation that addresses the barriers to translation of research outcomes into practical and sustainable day-to-day care that will enhance the quality of life for people living with dementia. She currently manages the DTA Fellowship Program which builds knowledge translation skills of clinical leaders in aged care.
Aspect of AJDC I would like to see develop: Supporting dementia care leaders to mobilise new knowledge and create a learning environment that supports innovation.
Ms Lynda Henderson
Connection to the dementia community: Lynda Henderson is the care partner/advocate of someone living with a very rare form of younger onset dementia.
Position/Job Title: Lynda is a Dementia Advocate with Dementia Australia, a supporter of Dementia Alliance International and a founding member of the Kiama Dementia Advisory Group. She is also a member of the OPAN (Older Persons Advocacy Network) National Reference Group, a representative for OPAN on the Assessment Working Group (a Department of Health project) and a member of the steering group for the Illawarra Dementia Forum.
Lynda’s research interests include supported decision-making, assistive communication technology, environmental design and supports, and relationships-based care.
Lynda and her partner gave evidence to the Royal Commission into Aged Care Quality and Safety, and have worked with national media to highlight some of the many issues affecting younger people in home/community and residential settings.
Her professional background includes access and equity policy analysis, qualifications design within the Vocational Education and Training (VET) sector, workforce development and training, and professional development.
Editorial Support Team
Mr Owen Wilkinson
Position/Job title: AJDC Website Support; Information Systems Officer
Owen is an experienced web and graphic designer. Driven to deliver the highest quality service of visual design and user experience across a range of platforms and software.