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Making communities more dementia-friendly: reference list

This is the complete list of references for the article, Making Communities More Dementia-Friendly, by Caroline Grogan, published in AJDC Aug/Sept 2019 (Vol 8 No 4) pp21-23. The article explores the four key elements required for creating dementia-friendly communities, based on the author’s review of national and international dementia-friendly community initiatives.



Alzheimer’s Australia & Alzheimer’s Disease International (ADI) (2015) Alzheimer’s Australia Western Australia Dementia Friendly Communities Project: Creating a Dementia Friendly WA. Available at: www.alz.co.uk/dementia-friendly-communities/resources.


Alzheimer’s Disease International (n.d) Netherlands, Dementia Friendly Communities. Available at: www.alz.co.uk/dementia-friendly-communities/resources.


Alzheimer’s Disease International (n.d) Japan, Dementia Friendly Communities. Available at: www.alz.co.uk/dementia-friendly-communities/japan.


Brannelly T, Gilmour JA, O’Reilly, Leighton M, Woodford A (2017) An Ordinary Life: People With Dementia Living In A Residential Setting. Dementia 18(2) 757-768.


Burton E, Mitchell L (2006) Inclusive Urban Design: Streets For Life (7th Ed). Oxford: Architectural Press.


Carpenter B, Dave J (2004) Disclosing A Dementia Diagnosis: A Review Of Opinion And Practice, And A Proposed Research Agenda. Gerontologist 44 (2) 149.


Chalk A, Page S (2016) Dementia RED (Respect Empathy Dignity): Collaborating to Build Dementia Supportive Communities In North Wales – Reporting On A Pilot Project (Innovative Practice). Dementia 15(2) 257-262.


Crampton J, Eley R (2013) Dementia-Friendly Communities: What The Project ‘Creating A Dementia-Friendly York’ Can Tell Us. Working With Older People 17(2) 49-57.


Downs M, Bowers B (2008) Excellence In Dementia Care: Research Into Practice. Berkshire: Open University Press.


Downs M, Bowers BJ (2014) Excellence In Dementia Care: Research Into Practice (2nd ED). Berkshire: Open University Press/McGraw-Hill Education.


Duffin C (2014) Dementia-Friendly Neighbourhoods. Nursing Older People 26(2) 16-17.


Fleming R, Bennett K, Preece T, Phillipson L (2017) The Development And Testing Of The Dementia Friendly Communities Environment Assessment Tool (DFC-EAT). International Psychogeriatrics 29(2) 303-311.


Gronemeyer R, Rothe V (2015) Dementia-Friendly Communities: Together For A Better Life With (And Without) Dementia. In: Compassionate Communities: Case Studies From Britain and Europe 184-197. UK: Taylor and Francis Inc.


Han A, Radel J, McDowd JM, Sabata D (2016) Perspectives of People with Dementia about Meaningful Activities. American Journal of Alzheimer’s Disease and Other Dementias 31(2) 115-123.


Hare P (2016) Dementia Without Walls: Reflections On The Joseph Rowntree Foundation Programme. Working With Older People 20(3) 134-143.


Hayashi M (2017) The Dementia Friends Initiative, Supporting People With Dementia And Their Carer: Reflections From Japan. International Journal of Care and Caring 1(2) 281-287.


Innes A, Page S, Cutler C (2016) Barriers To Leisure Participation For People With Dementia And Their Carers: An Exploratory Analysis Of Carer And People With Dementia’s Experiences. Dementia 15(6) 1643-1665.


Kuosa K, Elstad I, Normann HK (2015) Continuity and Change in Life Engagement Among People With Dementia. Journal of Holistic Nursing 33(3) 205-227.


Lindsay S, Brittain K, Jackson D, Ladha C, Ladha K, Olivier P (2012) Empathy, Participatory Design And People With Dementia. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems 521-530: New York: ACM.


Mather L (2006) Memory Lane Café: Follow-up Support For People With Early Stage Dementia And Their Families And Carers. Dementia 5(2) 290-293.


McCurry S, Drossel C (2011) Treating Dementia In Context: A Step-By-Step Guide To Working With Individuals And Families. Washington DC: American Psychological Association.


Mcfadden S, Koll A, McFadden S (2014) Popular Memory Cafes in Wisconsin’s Fox Valley Battle Social Isolation. Generations 38(1) 68-71.


McFadden S, McFadden J (2011) Aging Together : Dementia, Friendship, And Flourishing Communities. Baltimore: Johns Hopkins University Press


Meyer M (2017) Concrete Research Poetry: A Visual Representation of Metaphor. Art/Research International: A Transdisciplinary Journal 2(1) 32-57.


Miller E (2018) Breaking Research Boundaries: A Poetic Representation Of Life In An Aged Care Facility. Qualitative Research in Psychology 15(2-3) 381-394.


Mitchell L, Burton E (2010) Designing Dementia-Friendly Neighbourhoods: Helping People with Dementia to Get Out and About. Journal of Integrated Care 18(6) 11-18.


Nay R, Bauer M, Fetherstonhaugh D, Moyle W, Tarzia L, McAuliffe L (2015) Social Participation And Family Carers Of People Living With Dementia In Australia. Health & Social Care in the Community 23(5) 550-558.


Nomura M, Makimoto K, Kato M, Shiba T, Matsuura C, Shigenobu K, Ikeda M (2009) Empowering Older People With Early Dementia And Family Caregivers: A Participatory Action Research Study. International Journal of Nursing Studies 46(4) 431-441.


Phillipson L, Hall D, Cridland E, Fleming R, Brennan-Horley C, Guggisberg N, Hasan H (2018) Involvement of People With Dementia In Raising Awareness And Changing Attitudes In A Dementia Friendly Community Pilot Project. Dementia  (Online First) 1-16.


Phinney A, Chaudhury H, O’Connor DL (2007) Doing as much as I can do: The meaning of activity for people with dementia. Aging & Mental Health 11(4) 384-393.


Plunger P, Tatzer V, Heimerl K, Reitinger E (2016) Dementia Friendly Pharmacy: A Doorway In The Community In Vienna and Lower Austria. In: Wegleitner KH, Heimerl K, Kellehear A (Eds) Compassionate Comunities Case Studies From Britain And Europe. London: Routledge.


Rahman S (2017) Enhancing Health And Wellbeing In Dementia: A Person-Centred Integrated Care Approach. London: Jessica Kingsley Publishers.


Reese G (2015) Dementia Friendly Communities: Global Initiatives and Future Directions. Paper presented at Alzheimer’s Disease Association’s 25th Anniversary Synposium, Singapore.


Rivett E (2017) Research Involving People With Dementia: A Literature Review. Working with Older People 21(2)107-114.


Roach P, Drummond N (2014) ‘It’s Nice To Have Something To Do’: Early-Onset Dementia And Maintaining Purposeful Activity: Early-Onset Dementia And Purposeful Activity. Journal of Psychiatric and Mental Health Nursing 21(10) 889-895.


Roach P, Drummond N, Keady J (2016) ‘Nobody Would Say That It Is Alzheimer’s Or Dementia At This Age’: Family Adjustment Following A Diagnosis Of Early-Onset Dementia. Journal Of Aging Studies 36 26-32.


Smith K, Gee S, Sharrock T, Croucher M (2016) Developing A Dementia‐Friendly Christchurch: Perspectives Of People With Dementia.  Australasian Journal on Ageing 35(3) 188-192.


Smith R, Ooms A, Greenwood N (2017) Supporting People With Young Onset Dementia And Their Families: An Evaluation Of A Training Course For Care Workers. Nurse Education In Practice 27 7-12.


Stenhouse R, Tait J, Hardy P,  Sumner T (2013) Dangling Conversations: Reflections On The Process Of Creating Digital Stories During A Workshop With People With Early‐Stage Dementia. Journal of Psychiatric and Mental Health Nursing 20(2) 134-141.


Swaffer K (2016) What The Hell Happened To My Brain?: Living Beyond Dementia. London: Jessica Kingsley Publishers.


Tanner D (2012) Co-research With Older People With Dementia: Experience And Reflections. Journal of Mental Health 21(3) 296-306.


Turner N, Morken L (2016) Better Together: A Comparative Analysis of Age-Friendly and Dementia Friendly Communities. Washington DC: AARP International Affairs.


Vernooij-Dassen M, Moniz-Cook E (2016) Person-Centred Dementia Care: Moving Beyond Caregiving. Aging & Mental Health 20(7) 667-668.


Wiersma EC, Denton A (2016) From Social Network To Safety Net: Dementia-Friendly Communities In Rural Northern Ontario. Dementia 15(1) 51-68.


Young R, Camic PM, Tischler V (2016) The Impact Of Community-Based Arts And Health Interventions On Cognition In People With Dementia: A Systematic Literature Review. Aging & Mental Health 20(4) 337-351.


Zychlinski E, Ben-Ezra M, Raz YH (2016) Changing Attitudes About Disability: The Impact Of The ‘Accessible Community’ Program. Journal of Social Work 16(6) 742-757.

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