• Dementia Conference
  • Dementia Conference

Reference lists for AJDC, Vol 11 No 1, Jan/Feb/Mar 2022

Carer ‘craftivists’ make their point (pages 11-13)

by Chloe Watfern, Gaynor Macdonald, Imelda Gilmore, Lynne Stone and Michele Elliot

  • Australian Institute of Health and Welfare (2021) Dementia in Australia. Available at: www.aihw.gov.au/reports/dementia/dementia-in-aus.
  • Chan D, Livingston G, Jones L, Sampson EL (2013) Grief Reactions In Dementia Carers: A Systematic Review. International Journal of Geriatric Psychiatry 28(1) 1-17.
  • Cooper C, Balamurali T B, Livingston G (2007) A Systematic Review Of The Prevalence and Covariates Of Anxiety In Caregivers Of People With Dementia. International Psychogeriatrics 19(2) 175-195.
  • Corbett S, Housley S (2011) The Craftivist Collective Guide to Craftivism. Utopian Studies 22(2) 344-351.
  • Farina N, Page T E, Daley S, Brown A, Bowling A, Basset T, Livingston G, Knapp M, Murray J, Banerjee S (2017) Factors Associated With The Quality Of Life Of Family Carers Of People With Dementia: A Systematic Review. Alzheimer’s & Dementia. 13(5) 572-581.
  • Greer B (2014) Craftivism: The Art Of Craft and Activism. Vancouver: Arsenal Pulp Press.

COPE strategies offer practical at-home support (pages 17-19)

by Kate Laver, Sally Day, Miia Rahja, Jennifer Culph and Lindy Clemson

  • Clemson L, Laver K, Jeon Y-H, Comans TA, Scanlan J, Rahja M et al (2018) Implementation Of An Evidence-Based Intervention To Improve The Wellbeing Of People With Dementia And Their Carers: Study Protocol For ‘Care Of People With Dementia In Their Environments (COPE)’ In The Australian Context. BMC Geriatrics 18(1) 1-11.
  • Clemson L, Laver K, Rahja M, Culph J, Scanlan JN, Day S et al (2021) Implementing A Reablement Intervention, ‘Care Of People with dementia in their Environments (COPE)’: A Hybrid Implementation-Effectiveness Study. The Gerontologist 61(6) 965-976.
  • Dementia Australia (2019) Our Solution: Quality Care For People Living With Dementia. Canberra: Dementia Australia.
  • Fortinsky RH, Gitlin LN, Pizzi LT, Piersol CV, Grady J, Robison JT, Molony S, Wakefield D (2020) Effectiveness Of The Care Of Persons With Dementia In Their Environments Intervention When Embedded In A Publicly Funded Home- and Community-Based Service Program. Innovation In Aging 4(6) doi:10.1093/geroni/igaa053.
  • Gitlin LN, Winter L, Dennis MP, Hodgson N, Hauck WW (2010) A Biobehavioral Home-Based Intervention And The Well-Being Of Patients With Dementia And Their Caregivers: The COPE Randomized Trial. JAMA 304(9) 983-991.
  • Mooldijk SS, Licher S, Wolters FJ (2021) Characterizing Demographic, Racial, and Geographic Diversity In Dementia Research: A Systematic Review. JAMA Neurology 78(10) 1255-1261.
  • Rahja M, Comans T, Clemson L, Crotty M, Laver K (2018) Are There Missed Opportunities For Occupational Therapy For People With Dementia? An Audit Of Practice In Australia. Australian Occupational Therapy Journal 65(6) 565-574.
  • Rahja M, Nguyen KH, Laver K, Clemson L, Crotty M, Comans T (2020) Implementing An Evidence‐Based Dementia Care Program In The Australian Health Context: A Cost-Benefit Analysis. Health & Social Care in the Community 28(6) 2013-2024.
  • Rahja M, Culph J, Clemson L, Day S, Laver K (2020) A Second Chance: Experiences and Outcomes Of People With Dementia and Their Families Participating In A Dementia Reablement Program. Brain Impairment 21(3) 274-285.
  • Van’t Leven N, Prick A-EJ, Groenewoud JG, Roelofs PD, de Lange J, Pot AM (2013) Dyadic Interventions For Community-Dwelling People With Dementia and Their Family Caregivers: A Systematic Review. International Psychogeriatrics 25(10) 1581-1603.

At-home arts program a ‘prescription’ for wellbeing (pages 20-22)

by Claire O’Connor, Roslyn Poulos, Michelle Heldon, Linda Barclay, Elizabeth Beattie and Christopher Poulos

  • Alzheimer’s Australia (2014) Living With Dementia In The Community: Challenges and Opportunities. Retrieved from Scullin, ACT: www.dementia.org.au/sites/default/files/DementiaFriendlySurvey_Final_web.pdf.
  • Burnside LD, Knecht MJ, Hopley EK, Logsdon RG (2017) Here:Now – Conceptual Model Of The Impact Of An Experiential Arts Program On Persons With Dementia And Their Care Partners. Dementia, 16(1) 29-45.
  • DiLauro M, Pereira A, Carr J, Chiu M, Wesson V (2017) Spousal Caregivers And Persons With Dementia: Increasing Participation In Shared Activities Among Hospital-Based Dementia Support Program Participants. Dementia 16(1) 9-28.
  • Giebel CM, Challis DJ, Montaldi D (2014) A Revised Interview For Deterioration In Daily Living Activities In Dementia Reveals The Relationship Between Social Activities And Wellbeing. Dementia 15(5) 1068-1081.
  • HammondCare (2017) An Arts on Prescription Model To Promote Healthy and Active Ageing. Available at: www.hammond.com.au/arts-on-prescription-sector-guide/file.
  • Johnson J, Culverwell A, Hulbert S, Robertson M, Camic PM (2017) Museum Activities In Dementia Care: Using Visual Analog Scales To Measure Subjective Wellbeing. Dementia 16(5) 591-610.
  • Kaimal G, Ray K, Muniz J (2016) Reduction of Cortisol Levels and Participants’ Responses Following Art Making. Art Therapy 33(2) 74-80.
  • Pertl M, Rogers J, Galvin A, Maher M, Brennan S, Robertson I, Lawlor B (2015) Loneliness Predicts Dementia-Caregiver Burden Better Than Extent, Nature and Length Of Caregiving Or Support Service-Use. European Health Psychologist 17(Suppl) 529.
  • Poulos RG, Harkin D, Beattie E, Cunningham C, O’Connor CMC, Poulos CJ (2021) Arts on Prescription @ Home: Home-Delivered Participatory Art Pilot To Support Wellbeing In Dementia Carer And Care Recipient Dyads. Journal of Aging and Social Change 11(2) 33-49.
  • Poulos RG, Marwood S, Harkin D, Opher S, Clift S, Cole AMD, Rhee J, Beilharz K, Poulos CJ (2019) Arts On Prescription For Community-Dwelling Older People With A Range Of Health and Wellness Needs. Health and Social Care in the Community, 27(2) 483-492.
  • Rigby T (2004) Selling Social Inclusion Through The Arts. A Life in the Day 8(3) 25-28.
  • Secker J, Heydinrych K, Kent L, Keay J (2018) Why Art? Exploring The Contribution To Mental Well-Being Of The Creative Aspects And Processes Of Visual Art-Making In An Arts And Mental Health Course. Arts & Health 10(1) 72-84.
  • Spijker A, Vernooij-Dassen M, Vasse E, Adang E, Wollersheim H, Grol R, Verhey F (2008) Effectiveness Of Nonpharmacological Interventions In Delaying The Institutionalization Of Patients With Dementia: A Meta-Analysis. Journal of the American Geriatrics Society 56(6) 1116-1128.
  • van der Lee J, Bakker TJEM, Duivenvoorden HJ, Dröes RM (2014) Multivariate Models Of Subjective Caregiver Burden In Dementia: A Systematic Review. Ageing Research Reviews 15 76-93.

Developing effective online dementia care training: lessons from the trenches (pages 36-40)

by Sabrina Pit, Kathryn De Souza and Anne Moehead 

  • Australian Commission on Safety and Quality in Health Care (2016) Delirium Clinical Care Standard. Sydney: ACSQHC.
  • Australian Commission on Safety and Quality in Health Care (2017) National Safety And Quality Health Service Standards. 2nd ed. Sydney: ACSQHC.
  • Booth A, Carroll C, Papaioannou D, Sutton A, Wong R (2009) Applying Findings From A Systematic Review Of Workplace-Based E-Learning: Implications For Health Information Professionals. Health Information and Libraries Journal 26(1) 4-21.
  • Carroll C, Booth A, Papaioannou D, Sutton A, Wong R (2009) UK Health-Care Professionals’ Experience Of Online Learning Techniques: A Systematic Review Of Qualitative Data. Journal Of Continuing Education In The Health Professionals 29(4) 235-241.
  • Chen Y, Zheng J, Wu D, Zhang Y, Lin Y (2020) Application Of The PDCA Cycle For Standardized Nursing Management In A COVID-19 Intensive Care Unit. Annals of Palliative Medicine 9(3) 1198-205.
  • Collier E, Knifton C, Surr C (2016) Dementia Education In Higher Education Institutions. Nurse Education Today 35(6) 731-732.
  • Critical Appraisal Skills Programme (CASP) (2018) CASP Checklists. Oxford: CASP. Available at: https://casp-uk.net/casp-tools-checklists/
  • De Souza K, Pit SW, Moehead A (2020) Translating Facilitated Multimodal Online Learning Into Effective Person-Centred Practice For The Person Living With Dementia Among Health Care Staff In Australia: An Observational Study. BMC Geriatrics 20(1) 33.
  • Ellis C, Roland D, Blair ME (2013) Professional Education Interventions Designed To Improve Knowledge And Uptake Of Immunisation. Community Practitioner 86(6) 20-23.
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  • Kitwood TM (1997) Dementia Reconsidered: The Person Comes First. Buckingham: Open University Press.
  • Kuek A, Hakkennes S (2020) Healthcare Staff Digital Literacy Levels and Their Attitudes Towards Information Systems. Health Informatics Journal 26(1) 592-612.
  • Li Y, Wang H, Jiao J (2020) The Application Of Strong Matrix Management And PDCA Cycle In The Management Of Severe COVID-19 Patients. Critical Care 24 157.
  • Moehead A, DeSouza K, Walsh K, Pit SW (2020) A Web-Based Dementia Education Program and Its Application To An Australian Web-Based Dementia Care Competency And Training Network: Integrative Systematic Review. Journal Of Medical Internet Research 22(1) e16808. doi: 10.2196/16808
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  • Pit S, Fisk M, Freihaut W, Akintunde F, Aloko B, Berge B, Burmeister A, Ciacâru A, Deller J, Dulmage R, Han TH (2021) COVID-19 and The Ageing Workforce: Global Perspectives On Needs And Solutions Across 15 Countries. International Journal For Equity In Health 20(1) 1-22.
  • Prince M, Bryce R, Ferri C (2011) World Alzheimer Report. The Benefits Of Early Diagnosis And Intervention. London: Alzheimer’s Disease International.
  • Prince M, Wimo A, Guerchet M, Ali G, Wu Y, Prina M (2015) World Alzheimer Report. The Global Impact of Dementia. An Analysis Of Prevalence, Incidence, Cost And Trends. London: Alzheimer’s Disease International.
  • Scerri A, Innes A, Scerri C (2017) Dementia Training Programmes For Staff Working In General Hospital Settings – A Systematic Review Of The Literature. Aging & Mental Health 21(8) 783-796.
  • Sharp A (2012) Humanistic Approaches to Learning. In: Seel NM (eds) Encyclopedia Of The Sciences Of Learning. Boston, MA: Springer. doi: 10.1007/978-1-4419-1428-6_530
  • Surr C, Gates, C, Irving D, Oyebode J, Smith S, Parveen S, Dennison A (2017) Effective Dementia Education and Training For The Health And Social Care Workforce: A Systematic Review Of The Literature. Review Of Educational Research 87(5) 966-1002.
  • The Royal Commission Into Aged Care Quality and Safety (2021). Final Report: Care, Dignity And Respect. Canberra: Commonwealth of Australia.
  • United Nations Sustainable Development Group (2020) Policy Brief: Education During COVID-19 And Beyond August 2020. New York: UNSDG. Available at: https://unsdg.un.org/resources/policy-brief-education-during-covid-19-and-beyond
  • World Health Organization (WHO) (2022) Health Workforce Education and Training. Available at: www.who.int/activities/health-workforce-education-and-training

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