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Reference lists for AJDC, Vol 11 No 3, Jul/Aug/Sep 2022

Ask a neuroscientist: How do genes influence the risk of Alzheimer’s disease? (p 12)

By Simon Maksour and Rachelle Balez

  1. Deelen J, Evans DS, Arking DE et al (2019) A Meta-Analysis of Genome-Wide Association Studies Identifies Multiple Longevity Genes. Nature Communications 10, 3669. https://doi.org/10.1038/s41467-019-11558-2
  2. Jansen IE, Savage JE, Watanabe K et al (2019) Genome-wide meta-analysis identifies new loci and functional pathways influencing Alzheimer’s disease risk. Nature Genetics 51, 404-413. https://doi.org/10.1038/s41588-018-0311-9
  3. Schwartzentruber J, Cooper S, Liu JZ et al (2021) Genome-wide Meta-Analysis, Fine Mapping and Integrative Prioritization Implicate New Alzheimer’s Disease Risk Genes. Nature Genetics 53, 392-402. https://doi.org/10.1038/s41588-020-00776-w
  4. Ooi L (2021) Ask a neuroscientist. COVID-19 and dementia: what do we know? Australian Journal of Dementia Care 10(4) 12 https://journalofdementiacare.com/ask-a-neuroscientist-3/
  5. Australian Bureau of Statistics (2020) Causes of Death, Australia, 2019 (cat. No. 3303.0) https://www.abs.gov.au/statistics/health/causes-death/causes-death-australia/latest-release
  6. Dementia Australia (undated) The Genetics of Dementia. Online information. https://www.dementia.org.au/information/genetics-of-dementia
  7. Ooi L (2021) Ask a neuroscientist. What is brain plasticity and does it offer hope for people living with dementia? Australian Journal of Dementia Care 10(3) 12. Available at https://journalofdementiacare.com/ask-a-neuroscientist-2/

Taking action to support veterans with dementia (pp 14)

By Claudia Meyer, Xanthe Golenko and Judy Lowthian

  1. Aged Care Sector Committee Diversity Sub-group, Department of Health (2017) Aged Care Diversity Framework. Canberra: Department of Health.
  2. Meziab O, Kirby K, Williams B et al (2014) Prisoner of war status, post-traumatic stress disorder, and dementia in older veterans. Alzheimer’s & Dementia 10(Supp 3), S236-41.
  3. Qureshi S, Kimbrell T, Pyne J et al (2010) Greater Prevalence and Incidence of Dementia in Older Veterans with Posttraumatic Stress Disorder. Journal of the American Geriatrics Society 58, 1627-33.
  4. Dallam D, Mellman T, Bhatnagar A et al (2011) Trauma Re-Enactments in Aging Veterans with Dementia. Journal of the American Geriatrics Society 59(4) 766-768.
  5. Yaffe K, Vittinghoff E, Lindquist K (2010) Post-Traumatic Stress Disorder and Risk of Dementia Among US Veterans. Archives of General Psychiatry 67(6) 608-13.
  6. Dunt D, Doyle C, MacFarlane A et al (2012) The Impact of War Experiences on Dementia in Veterans. Melbourne: University of Melbourne.
  7. Meyer C, O’Keefe F (2018) Non-Pharmacological Interventions for People with Dementia: A Review of Reviews. Dementia 19(6) 1927-1954.
  8. Cummings J, Mega M, Gray K et al (1994) The Neuropsychiatric Inventory: Comprehensive Assessment of Psychopathology in Dementia. Neurology 44(12) 2308-14.
  9. Mahoney F, Barthel D (1965) Functional Evaluation: The Barthel Index: A Simple Index of Independence Useful in Scoring Improvement in the Rehabilitation of the Chronically Ill. Maryland State Medical Journal 14, 61-65.
  10. de Morton N, Lane K (2010) Validity and Reliability of the de Morton Mobility Index in the Subacute Hospital Setting in a Geriatric Evaluation and Management Population. Journal of Rehabilitation Medicine 42(10) 956-61.
  11. Jorm A, MacKinnon A (1995) The Psychogeriatric Assessment Scales. Canberra: Australian National University.
  12. Alexopoulos G, Abrams RC, Young RC, Shamoian CA (1988) Cornell Scale for Depression in Dementia. Biological Psychiatry 23(3) 271-84.

Green Scripts: prescribing nature as therapy (pp 17)

By Caroline Gibson and Mark Yates

  1. Pretty J, Peacock J, Sellens M, Griffin M (2005) The Mental and Physical Health Outcomes of Green Exercise. International Journal of Environmental Health Research 15(5) 319-37.
  2. Kaplan R (2001) The Nature of the View from Home: Psychological Benefits. Environment and Behavior 33(4) 507-42.
  3. Akers A, Barton J, Cossey R et al (2012) Visual Color Perception in Green Exercise: Positive Effects on Mood and Perceived Exertion. Environmental Science & Technology 46(16) 8661-66.
  4. Li Q, Kobayashi M, Wakayama Y et al (2009) Effect of Phytoncide from Trees on Human Natural Killer Cell Function. International Journal of Immunopathology and Pharmacology 22(4) 951-9.
  5. Fisher JC, Irvine KN, Bicknell JE et al (2021) Perceived Biodiversity, Sound, Naturalness and Safety Enhance the Restorative Quality and Wellbeing Benefits of Green and Blue Space in a Neotropical City. Science of the Total Environment 755 143095.
  6. Gladwell VF, Brown DK, Wood C et al (2013) The Great Outdoors: How a Green Exercise Environment Can Benefit All. Extreme Physiology & Medicine 2(1) 3.
  7. Chatterjee HJ, Camic PM, Lockyer B, Thomson LJM (2018) Non-Clinical Community Interventions: A Systematised Review Of Social Prescribing Schemes. Arts & Health 10(2) 97-123.
  8. Evans SC, Barrett J, Mapes N et al (2019) Connections with Nature for People Living with Dementia. Working With Older People 23(3)142-51.
  9. Consumers Health Forum. Social Prescribing November 2019 Roundtable Report. 2020.

Montessori-inspired care: changing lives for the better (pp 21)

By Jade Cartwright, Elizabeth Oliver, Anne Kelly and Anne Whitworth

Please note: references 1 and 2 are in the case-study box on p 22.
  1. Australian Institute of Health and Welfare (2021) Dementia in Australia. Canberra: AIHW. https://www.aihw.gov.au/reports/dementia/dementia-in-aus/contents/about
  2. Steele L, Swaffer K, Carr R, Phillipson L, Fleming R (2020) Ending Confinement and Segregation: Barriers to Realising Human Rights in the Everyday Lives of People Living With Dementia in Residential Aged Care. Australian Journal of Human Rights 26(2) 308-328. https://doi.org/10.1080/1323238X.2020.1773671
  3. Cartwright J, Roberts K., Oliver E, Bennett M, Whitworth A (2022) Montessori Mealtimes For Dementia: A Pathway To Person-Centred Care. Dementia 21(4) 1098-1119. https://doi.org/10.1177/14713012211057414
  4. Roberts G, Morley C, Walters W, Malta S, Doyle C (2015) Caring For People With Dementia in Residential Aged Care: Successes with a Composite Person-Centered Care Model Featuring Montessori-Based Activities. Geriatric Nursing 36(2) 106-110. https://doi.org/10.1016/j.gerinurse.2014.11.003
  5. Association Montessori Internationale (AMI) (2017) Montessori for Ageing and Dementia. Amsterdam: AMI. http://www.massa.org.au/sites/default/files/AMIMAGADBrochure2017.pdf
  6. Eckermann S, Phillipson L, Fleming R (2019) Re-Design of Aged Care Environments is Key to Improved Care Quality and Cost Effective Reform of Aged and Health System Care. Applied Health Economics and Health Policy 17(2) 127-130. https://doi.org/10.1007/s40258-018-0435-1
  7. Henderson J, Willis E, Xiao L, Blackman I (2017) Missed Care in Residential Aged Care in Australia: An Exploratory Study. Collegian 24(5) 411-416. https://doi.org/10.1016/j.colegn.2016.09.001
  8. Savundranayagam MY (2014) Missed Opportunities for Person-Centered Communication: Implications for Staff-Resident Interactions in Long-Term Care. International Psychogeriatrics 26(4) 645-655. https://doi.org/10.1017/S1041610213002093
  9. Clifford C, Doody O (2018) Exploring Nursing Staff Views of Responsive Behaviours of People with Dementia in Long‐Stay Facilities. Journal of Psychiatric & Mental Health Nursing 25(1) 26-36. https://doi.org/10.1111/jpm.12436
  10. Yury CA, Fisher JE (2007) Preventing Excess Disability in an Elderly Person with Alzheimer’s Disease. Clinical Case Studies 6(4) 295-306. https://doi.org/10.1177%2F1534650106288233
  11. Camp CJ (2010) Origins of Montessori Programming for Dementia. Non-Pharmacological Therapies In Dementia 1(2) 163.
  1. Douglas N, Brush J, Bourgeois M (2018) Person-Centered, Skilled Services Using a Montessori Approach for Persons with Dementia. Seminars In Speech & Language 39(3) 223-230. https://doi.org/10.1055/s-0038-1660781
  2. Ducak K, Denton M, Elliot G (2018) Implementing Montessori Methods for Dementia™ in Ontario Long-Term Care Homes: Recreation Staff and Multidisciplinary Consultants’ Perceptions of Policy and Practice Issues. Dementia 17(1) 5-33. https://doi.org/10.1177%2F1471301215625342
  1. Standing EM (1962) Maria Montessori: Her Life and Work. New York: New American Library.

Whither (or wither) public involvement in dementia research in Australia? (p26)

By Jane Thompson

  1.  Thompson J (2016) Don’t lose sight of the consumers. Australian Journal of Dementia Care 5(5) 2.
  2. NIHR (2019) UK Standards for Public Involvement. Available at: https://sites.google.com/nihr.ac.uk/pi-standards/home
  3. 3 NIHR (2021) Briefing notes for researchers: public involvement in NHS, health and social care research. Online information available at https://www.nihr.ac.uk/documents/briefing-notes-for-researchers-public-involvement-in-nhs-health-and-social-care-research/27371
  4. Greenhalgh T, Hinton L, Finlay T et al (2019) Frameworks for supporting patient and public involvement in research: Systematic review and co‐design pilot. Health Expectations 22(4) 785-801.
  5. Alzheimer’s Society (undated) Our research network. Online information available at https://www.alzheimers.org.uk/research/get-involved/our-research-network-volunteers
  6. Alzheimer’s Society (2018) “We can make our research meaningful”: The impact of the Alzheimer’s Society Research Network. London: Alzheimer’s Society.  https://www.alzheimers.org.uk/sites/default/files/2018-04/Research%20Network%20Report%20low-res.pdf
  7. Westera, A, Thompson C, Morris D, Blissett C, Navakatikyan M (2013) Evaluation of the Consumer Dementia Research Network – Final Report. Wollongong: Centre for Health Service Development, University of Wollongong.
  8. NNIDR (2020) Becoming involved in research: a guide for people living with dementia, their care partners and family members. Canberra: NHMRC National Institute for Dementia Research (NNIDR). Available at: https://dementiaresearch.org.au/wp-content/uploads/2021/01/Dementia-consumer-toolkit_NNIDR-NHMRC.pdf
  9. Dementia Australia Research Foundation (2021) Increasing Advocate Involvement in Research. Advocate and Researcher Perspectives. Canberra: Dementia Australia Research Foundation.
  10. Ayton D, Braaf S, Jones A et al (2021) Barriers and enablers to consumer and community involvement in research and healthcare improvement: Perspectives from consumer organisations, health services and researchers in Melbourne, Australia. Health & Social Care in the Community, 00, 1-14. https://doi.org/10.1111/ hsc.13515
  11. National Health and Medical Research Council (2016) Statement on Consumer and Community involvement in Health and Medical Research, Consumers Health Forum of Australia.
  12. Staley K, Elliott J, Stewart D et al (2021) Who should I involve in my research and why? Patients, carers or the public? Research Involvement & Engagement 7, 41 https://doi.org/10.1186/s40900-021-00282-1
  13. Van Hemelrijck M, Peters V, Loong JF et al (2021) The importance of patient and public involvement in cancer research: time to create a new job profile. Future Oncology 17(28) https://doi.org/10.2217/fon-2021-0489
  14. Richards D, Jordan I, Strain K, Press Z (2018) Patient partner compensation in research and health care: the patient perspective on why and how, Patient Experience Journal 5(3) 6-12.
  15. Australian Clinical Trials Alliance (2021) Toolkit for Researchers and Research Organisations. Online resource available at https://involvementtoolkit.clinicaltrialsalliance.org.au/toolkit/
  16. Staley K, Cockcroft E, Shelly A et al (2019) ‘What can I do that will most help researchers?’ A different approach to training the public at the start of their involvement in research. Research Involvement & Engagement 5, 10. https://doi.org/10.1186/s40900-019-0144-4
  17. University of Edinburgh and Scottish Dementia Working Group (2019) Core principles for involving people with dementia in research. Edinburgh: University of Edinburgh and SDWG. Available at: https://www.alzscot.org/sites/default/files/2019-07/Core%20Principles.pdf
  18. Denegri S, Starling B (2021) COVID-19 and patient engagement in health research: What have we learned? Canadian Medical Association Journal 193 (27) E1048-E1049. https://doi.org/10.1503/cmaj.210998
  19. Dementia Australia (2021) We can tackle Australia’s dementia epidemic. Available at: https://www.dementia.org.au/sites/default/files/2021-04/NCDC_Proposal_13_April.pdf
  20. Nunn J (2015) ‘Consumer’ should be a taboo word in public services. Health Issues 114, 38-40.

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