Researchers from the COGNISANCE project – led by Professor Henry Brodaty at the Centre for Healthy Brain Ageing, UNSW Sydney – are seeking participants keen to share their experiences of dementia diagnosis and the support available after diagnosis.
The three-year international project aims to co-design, develop, test and implement toolkit resources to improve diagnosis and post-diagnostic support for people living with dementia and their families. There will be one toolkit for health and social care practitioners and one for people at risk of dementia, those recently diagnosed and their care partners.
The project is commencing with a 15-20 minute survey: one for health care and social service professionals involved in assessment and diagnosis of dementia and/or post-diagnostic support; one for people diagnosed with dementia within the past two years; and one for care partners (the person providing primary support for a person diagnosed within the past two years).
The COGNISANCE team at their first consortium meeting in The Hague, October, 2019
At the end of the survey, there is an opportunity to become involved in the project: for example, by joining an online focus group, a co-design group to develop the toolkits, or by agreeing to be involved in user testing of the toolkits.
For more information or for access to paper versions of the survey, contact Tanya Duckworth at the University of Sydney on 0431 894 693 or firstname.lastname@example.org.
The COGNISANCE research is being funded by the Australian Government’s National Health and Medical Research Council and the international consortium includes representatives from UNSW, the University of Sydney, the University of Wollongong, various universities in Europe, the UK and Canada, the World Health Organisation, Dementia Alliance International, and Alzheimer’s Disease International.
Study Coordinator Dr Meredith Gresham (pictured) introduced the COGNISANCE project to AJDC readers in an article entitled Co-designing Dementia Diagnosis And Support in the April/May 2020 issue of AJDC. See https://journalofdementiacare.data.com.au/Shop/BackIssues
Dr Meredith Gresham
Professor Henry Brodaty