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Rethinking respite care

Rethinking respite care

Lyn Phillipson reports on an innovative project that is designed to support carers and people living with dementia to use respite services, as well as addressing the low uptake for these services Caring for a family member with dementia can be a positive experience (Carbonneau & Desrosiers 2010).  However, caring for someone with dementia has… Continue Reading

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The Australian Journal of Dementia Care is a multidisciplinary journal for all professional staff working with people with dementia, in hospitals, nursing and residential care homes, day units and the community. The journal is committed to improving the quality of care provided for people with dementia, by keeping readers abreast of news and views, research, developments, practice and training issues.

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IN THIS ISSUE: AUGUST/SEPTEMBER 2016

You are not alone

This is the first of two special issues of AJDC showcasing the work of the Dementia Collaborative Research Centres. The articles in this issue highlight the theme for Alzheimer’s Australia Dementia Awareness Month in September – You Are Not Alone.

  • Uncovering the hidden truth: Jennifer Fletcher and Lee-Fay Low report on an Australian-first study which is helping build a picture of the lived experience and needs of the estimated 65,000 Australians with dementia who live alone
  • Helping carers know they’re not alone: Maria O’Reilly, Elaine Fielding, Sandra Jeavons and Elizabeth Beattie introduce a new consumer guide for carers of people with dementia featuring the words and experiences of carers themselves
  • Thinking and motor skills in people with the fragile X premutation: Julian Trollor and Rachael Birch present findings from an Australian study into fragile X-associated tremor ataxia syndrome (FXTAS), one of the most common inherited causes of dementia and movement disorder in mid-life
  • First online test to measure Alzheimer’s risk: Sarang Kim and Kaarin Anstey introduce a free, online tool which allows people to assess their risk of developing Alzheimer’s disease after the age of 60
  • Making air travel easier: Until now, there’s been very little research on the issue of air travel for people with dementia. Maria O’Reilly and Nicole Shepherd are exploring this issue and developing resources to make air travel easier. Read the article here
  • Dementia and the ageing prisoner: The challenge of dementia care in prisons is growing as the ageing prison population rises. However, little is known about this group and the impact it will have on the prison community and justice system. Monica Cations reports
  • Dementia in people with an intellectual disability: Elizabeth Evans, Clancy Black and Julian Trollor describe their research which aims to improve care and identify risk factors and tools for screening and assessing dementia in people with intellectual disability
  • Carer coaching: Lynn Chenoweth reports on a successful Australian carer coaching program for families living with dementia that, among other positive outcomes, has encouraged carers to seek support and use respite services for the first time

 

Also in this issue

  • The story of dementia: Christine Bryden and Kate Swaffer: John Killick continues his series of articles exploring the history of dementia through the stories of individuals
  • Adult safeguarding – effective leadership is vital: Good leadership is key to preventing the abuse of older people. In the final part of their series on safeguarding, Lynne Phair and Hazel Heath ask what it takes to be a successful leader
  • Reading dementia: How do we ‘read’ dementia and how much insight might people have into their own condition? Sarah Hesketh discusses a project based on the stories of three people who lived in the same care home
  • Rethinking respite care: Lyn Phillipson reports on an innovative project to support carers and people living with dementia to use respite services. Read the article here

 

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